About Us
ONE VISION.
ONE VOICE.
ONE FUTURE.
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Our strength is our community, our commitment to collaboration, and our shared belief that we can improve the lives of those impacted by epilepsy – by working together. We are people living with epilepsy, caregiver, advocates and policy makers. Together, we will win a National Plan for all people affected by epilepsy –because together we are inevitable.
ABOUT US
We are driven by two steering committees composed of a diverse group of representatives from national provider and patient epilepsy organizations.
Advocacy & Outreach
Steering Committee
Leads introduction,
implementation and execution of federal legislation for a National Plan.
Laura Lubbers, CURE Epilepsy
Laura Weidner, Epilepsy Foundation
JayEtta Hecker, DEE- Connections
Gabi Conecker, DEE-P Connections
Ilene Miller, Rare Epilepsy Network
Government Relations
by G2GConsulting
Contact: Katie Collins
kcollins@g2gconsulting.com
Fiscal Sponsor: Epilepsy Foundation
National Plan for the Epilepsies
Steering Committee
Leverage subject matter expertise to design the programmatic elements and substance of the National Plan.
Jack Parent, American Epilepsy Society
Beth Dean, CURE Epilepsy
Dan Lowenstein, Advocacy & Outreach Steering Committee
Laura Weidner, Epilepsy Foundation
Amanda Mitchell, Epilepsy Leadership Council
Jaideep Kapur, International League Against Epilepsy –North America
Project Management
by Artemis Policy Group
Contact: Johanna Gray
jgray@artemispolicygroup.com
Fiscal Sponsor: American Epilepsy Society
CAMPAIGN BRAND STRATEGY AND COMMUNICATIONS: Mark Slater, OTHERSIDE
