NOW AVAILABLE:
EPILEPSY COMMUNITY CONSENSUS PRIORITIES WITH GOALS FOR THE NATIONAL PLAN FOR EPILEPSY
Over the past year, dozens of members of the epilepsy community and representatives from epilepsy organizations contributed to a process spearheaded by the National Plan for Epilepsy Committee (NPEC) to draft recommendations with bold goals and targeted actions for policymakers and epilepsy organizations to prevent, diagnose, treat, and cure epilepsy, including rare and genetic epilepsies, across the life span and etiologies.
The “Epilepsy Community Consensus Priorities” seek to:
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End the stigma towards epilepsy
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Improve the learning environment and educational opportunities and increase the employment of people living with epilepsy
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Reduce burden and improve quality of life for people living with epilepsy and their caregivers, including by addressing the impact of seizures and comorbidities
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The draft priorities were distributed widely for public comment and we thank everyone for their input!
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The Consensus Priorities are now available for review. Please review, provide feedback, and stay tuned for next steps on implementation.
We especially welcome your thoughts on whether these priorities and strategies reflect your lived experience as a person living with epilepsy, a caregiver, medical practitioner, researcher, advocate, etc - have we identified and proposed strategies to address your challenges? If not, please let us know what is missing.
Thank you to the dozens of community members that have participated in the NPEC process so far and contributed their expertise to get us to this stage. We are eager for comments from across the epilepsy community as we refine this draft together.